Category Archives: Son

You Might Be An #Autism Parent If…

Posted in Autism/Special Needs, Son by

Borrowed from Autism Spectrum Disorder, Through My Eyes‘ Facebook Page. Have experienced the majority of these with my son.

  • Your 8 yr old has mastered every level of Lego Star Wars but can’t put on his own shirt w/out help.
  • You’re not sure who needs the padded helmet w/ faceguard more…your kid, or you.
  • You know its a bad day when you find all the trains lined up
  • You have more people that understand you in other states and countries than in your own neighborhood.
  • You have to communicate in sequences….i.e. first brush teeth, then bedtime.
  • You get so excited when your child masters a skill that he/she is a year or more delayed in!
  • You know *just* how much silence is too much silence. And then you run to check on them.
  • You use the phrase “use your words” repeatedly throughout the day
  • Your son is 8 years old but still pees on his pants at least once a week.
  • Your child makes up un-funny jokes in an attempt to understand humor, irony, and metaphor – unsuccessfully.
  • The school staff hates to see you coming! Because they know you’re not taking any crap when it comes to your kids!
  • You make up songs for almost anything because your kid responds better to it.
  • You have a heart attack when you see the school phone number on the caller i.d. Shit! What did he do now?
  • You’ve ever carried a screaming, flailing child out of a store & you knew it was for the best.
  • There are days you feel and look like a battered wife because your child had a major meltdown
  • You’re accused of being overly protective of your child, and overly sensitive to popular culture!
  • Your kid has the hardest time telling you the simplest of things, but can turn Legos into amazing things with no plans
  • Your child tells a joke over and over until somebody laughs
  • Every activity you do comes with a series of warnings approaching the end of the activity.
  • You can’t vacuum without a 15 minute warning announcement
  • You’re sometimes amazed at the sounds and faces your child can make in a day!
  • You have had someone say “maybe if you were more consistent….” and you want to gut punch them
  • It doesn’t matter how cold it is, your child WILL NOT go to sleep without the fan on in his room.
  • Anything “_____tard” is likely to not only offend, but infuriate you!
  • You start to realize the apple doesn’t fall far from the…hey is that a squirrel?
  • You really relate to ‘ Gerald Mc Boing Boing’
  • Your twitter friends understand you and your child better than your local friends
  • You know exactly what a pooptastrophe is and are happy beyond words when your child outgrows this behavior.
  • Everytime ANYONE comes to your house your child tries to hijack them to come play legos with him.
  • You have to think through EVERYTHING you need to say first so that your child doesn’t take something literally.
  • You sigh when other people tell you how their parents handled that when THEY were kids.
  • You’ve given a complete stranger a tongue lashing for suggesting your kid has a discipline problem
  • You’re used to strangers looking to you for translation because they couldn’t understand a word your kid said
  • You sometimes have to remind yourself there are a lot worse things that could happen to your child than autism.
  • You avoid public bathrooms because they are too loud and cause sensory overload.
  • People always question your child’s behaviour and the way you raise your child.
  • You see no problem with your child scooting around on the floor with his head down for hours making weird sounds
  • You’ve apologized to restaurant staff because your child said the place smelled bad and you had to leave.
  • There are lines and lines and LINES of small toys all over the place
  • You know your child was given dairy milk at school because he’s acting crazier than normal.
  • Your child refers to a friend as “The Third Boy” rather than by name even after a year.
  • You forget how delayed your child’s speech is until you hear a 4 yr old talk better than your 8 yr old
  • You still get nervous before an IEP no matter how many times you’ve had one.
  • You dont even blink an eye when seeing a child twirling and flapping in public
  • You have to buy your child’s favorite food in bulk quantities because anything else you buy will go uneaten.
  • You have the child locks on your car doors because your child has tried to jump out driving down the road.
  • Your 7 year old has designed 40 different versions of the Dominator from Storm Chasers
  • It makes you sick when other normal kids your child’s age make comments or stare during an inclusive sport
  • You feel like a stuck record when asking a kid to do a simple as “put your jacket on”
  • You think a meltdown is something that happens to a child, not a nuclear reactor.
  • You get pissed at parents of neurotypical kids because they call you selfish for NEEDING A BREAK
  • Your child lectures you on the dangers of speeding as you drive them to kindergarten
  • You can tell the difference between a meltdown and a temper tantrum even when nobody else can
  • You have to explain EVERY step in the process. i.e. 1.raise hand 2.WAIT to be called on 3.answer.
  • Your child has 3 time frames – Today, Tomorrow, and Later.
  • You’re afraid to put your child in sports because it could cause a sensory meltdown in public
  • You’ve ever cleaned poop off the walls of your apartment at 5am.
  • You plead with your child to be allowed to throw away the packaging
  • You’ve ever cried because a teacher “gets it”
  • You remarry and are super grateful that your spouse chose you and loves your child like his own.
  • You’ve ever wanted to strangle a neighbor kid for bullying your child but were too busy crying instead.
  • You’ve ever put special locks on your doors to keep your child from eloping.
  • The words, “he doesn’t look like he has Autism” make you roll your eyes.
  • You don’t even react to all the strange screeches, grunts, snorts, etc coming from your child.
  • You’ve got Meltdown Early Warning Radar
  • You want to cry when someone says, “He must be mild…”
  • You use the Nintendo or ipod as a muffling device when you know you’re going somewhere overstimulating
  • You consider friends you’ve only talked to on-line as some of your most trusted confidants
  • You know the name of every Thomas engine.
  • You’ve wanted to strangle a parent of a neurotypical child who says your child just needs some discipline.
  • Some days you don’t have much to say to “normal” parents.
  • There are three sets of rules on your fridge, including one your child made for the dog. (Rules are important!!)
  • You celebrate with a friend when her child eats two bites of pancakes!
  • You brace yourself for a tantrum when you inform your kid there’s an errand you forgot, and wasn’t on the list
  • You’ve left a full cart in the store and left because of a meltdown.
  • You consider twitter peeps you’ve never met, who have autistic children, some of your best friends.
  • Your child has beaten Lego Star Wars 3 times in the last year and he’s only 7.
  • You watch a movie via your child mimicking it back at you instead of watching it on TV.
  • You get excited when your child eats something more than chicken nuggets and pizza.
  • You still bear scars from your child’s last 3 meltdowns.
  • You carry earmuffs and sunglasses in your purse for your child at all times.
  • You get excited when your child swears because at least they said something.
  • You have to change the movie your child is watching 10 times in 5 minutes because he wants to watch something else.
  • You watch the same movie over and over again with your child and don’t complain.
  • You get both hit and hugged within 5 seconds of each other.
  • You can’t wait for your child to go to school after a hectic weekend but miss ‘em minutes after school starts.
  • You would trade everything you have to spend just half an hour in your child’s mind to know how and what they’re thinking.
  • You find yourself using your child’s therapeutic coping strategies for yourself.
  • Your blood boils every time you see a status update about an autistic child being bullied.
  • The definition of a clean house is now one that doesn’t have an overflowing trash can, dishes in the sink are rinsed, and laundry is at least in the hamper or in the basket.
  • Your friends fade as your life is consumed with many therapists, teachers, doctors, case managers, intervention specialists and these people have no clue you almost feel like they are your new best friends because you spend so much time around them and the subject of conversation is your children…
  • A ‘good day’ means no one’s in the hospital, no one from the school called, no one from the police department is standing on your lawn and everyone’s sitting in one room without a problem.
  • You might be an autism parent if someone walks into your house and asks if you live in a dangerous neighborhood and you say no… the window locks, gate locks and three types of door locks are to keep my kid in… not bad guys out.
  • Your blood boils and it touches a nerve whenever you hear a child with autism being called the ‘R’ word.
  • Sleep has become more of a luxury than routine.
  • You never dare touch or move any of the perfectly lined toys/items on the floor, not even by a millimeter because you know he/she will immediately recognize the difference.
  • If your child accomplishes something that may seem minor and trivial to others, but for you it’s a great milestone that calls for a huge celebration and victory dance.
  • You’re able to spot another child on the spectrum from a mile away.
  • You’ve come to the realization that no one else will ever truly get what being an Autism parent is like than another autism parent. ♥

World #Autism Awareness Day FAQs – Day 2

Posted in Autism/Special Needs, Reflections, Son by

Autism 21

Question from one of my friends when I invited them to ask questions on my personal Facebook:

“I want to know just how wide is the diagnosed spectrum?”.

Well, the saying “When you’ve met one person with Autism, you’ve only met one person with Autism” is true. Some children are considered to be low-functioning, some high-functioning, and some in between, all in comparison to other kids without Autism of the same age. So the width of the Spectrum is frankly, huge…but always presents characteristics and behavioural traits that lead specialists to diagnose that child with Autism. The definition of Autism according to Wikipedia is:

“as a disorder of neural development characterized by impaired

social interaction and communication,

and by restricted and repetitive behaviour”

 

Common characteristics that parents initially present to their family doctor include some and/or all of the following:

  • no eye contact
  • don’t point using their index finger
  • using someone else to point
  • start talking and stop
  • line up items such as toys, etc
  • toe-walking
  • stimming (repeated body movements such as hand flapping, rocking, head butting)
  • unusual responses to people or attachments to objects
  • resistance to changes in routines
  • sensitivities (hyper- or under-) to things like sounds, tastes, etc

More information is available on the Autism Ontario website.

 

When we started on this journey, we approached the doctor when my son was 18months old, saying that he had been talking but stopped (whereas his sister started a bit later but kept on talking), didn’t make eye contact with anyone but me, used his father and I’s hands to point to items, and was lining up all his toys. It took another 2 years to get official diagnosis, where he was classified as “severe” but for those who know my son in person, they are amazed as this. He’s a happy little boy, with a smile that lights up the room, can work his way around Youtube like no one’s business, has made amazing developmental leaps in the last couple of years, is a funny dancer, and best of all…is talking! He doesn’t speak the way other 7, almost 8 year old little boys do, but his speech is one of the sweetest sounds I’ve ever heard…primarily because I’ve waited so long to hear it.

April is #Autism Awareness Month

Posted in Autism Pictures, Autism/Special Needs, Son, Things I'm Excited About by

April is Autism Awareness month…which basically gives me “permission” to talk more than usual about Autism. ;)  I’ve decided to join A Legion for Liam‘s “30 Days of Autism – a photo a day of our life & Autism”. Want to join us? If you don’t have a blog, feel free to email me or Facebook me your picture and I’m happy to post on my blog.

30 days of Autism pics

 

My first picture for Day 1 is of my son doing his acrobatics on a rock feature at a local conservation area. I have shared this picture before but it makes me smile whenever I see it:

IMG_0947

 

Disconnect Between Logic and Emotions (#Autism)

Posted in Autism/Special Needs, Daughter, Son by

Logic vs emotion 

I haven’t posted much this week. Was a bit busier than usual but honestly, it’s been an emotional week…one where I’m still wrestling with logic vs emotions, trying to see the positive side of things. We received the report from my son’s assessments when he started IBI therapy at this location (after we moved last summer).

 

Because of staffing issues, the meeting for the report was 5 months after the assessments were done. These assessments are done every 6 months so you would think I would be ready for them each time, but at the end of the day, I’m not. I go into a bit of an emotional turmoil each and every time. See, these assessments compare my wonderful and amazing son to neurotypical kids of the same age.

 

I made the choice a long time ago to focus on the positive side of things…what my son can do, the humour of it all, and recognize how hard he works to do the things that come easily to other kids: sitting down for longer than 30 seconds, finally being potty trained at 7 years old, knowing what to do at the park, sleeping through the night, and the biggest of all…finally learning how and when to talk! He overcomes so much to be able to do these things that it’s a party around here whenever he masters a new task!

 

On the tough days, when Autism seems to take over, I try to stay on the logical side of my brain…looking at how I can support his IBI programming, manage his surroundings, minimize external over-stimulus, etc. So, when I get reminded with these assessments that on average, he’s about 5 years developmentally behind from other children his age, and despite having a twin sister who doesn’t have an ASD diagnosis, it’s really hard to manage my own emotions around this reality. I have a hard time managing the emotions vs the logic of it.

 

All I can say is that it’s a good thing I have a counseling appointment booked for next week! ;)